Tag: poetry

Ummm What?????

Read like you can hear my voice…well those that know my voice..enjoy.

WTF…but I’m super duper happy!!! Let me tell you my short little story that turned my world right side up. 

 I got a letter from the doctor after my completed procedures…Imagine me sitting next to the campfire with the night sky sparkling above, a blanket over my head, and a flashlight held up to my face. Lol. DO IT!!!!

Did you do it??? Keep hold of that image…

This letter tells me NO celiac disease found. Mind blown!! It’s bursting at the seams so over joyed. POP!!

Mind you I need to wait to officially confirm with the other doctor BUT omgoodness….I am not always careful what I order so I’m sure well actually I know I’ve eaten gluten occasionally over several months. Since reading this letter all I can think about is how I need to plan another Disney trip but only because I want a damn churro, monte cristo AND beignets!!! Then there’s all the other food I’ve cut out since being told I’m a celiac in 2019!! 

Omgoodness. Excuse me while I clean up my drool…

  • Cinnabon
  • Christmas cookies
  • Crab rangoon
  • Sushi
  • Chicken tenders
  • Fried chicken
  • McDonald’s fries!! 

Umm what else…

  • Normal tortillas
  • Burritos at Mexican restaurants and Taco Bell bahaha
  • PASTA
  • Yummy pizza crust
  • ICE CREAM with cookie and brownie pieces

Ugh so much food. Where do I even start?? Well with the doctor I guess…

  • Omgoodness Olive Garden
  • Never ending pasta 
  • Portobello ravioli 
  • Bagels 
  • Potlucks I’ve missed 
  • Red vines oh my
  • Pretzels with cheese sauce 🤤
  • Chinese food get in my belly 
  • Hot dog at baseball games
  • Birthday cupcakes!!
  • All the bread!!!
  • No label looking – playing I spy for GF
  • All my favorite Oreos!!!!!
  • Crazy bread
  • Stouffers Mac n cheese 
  • Crazy bread!!!
  • Goldfish!
  • Chez- its!!
  • Angel hair pasta 
  • Pasta Roni 
  • Western bacon cheeseburger from Carls Jr
  • Doughboy donuts
  • Corn nuts
  • Panda Express 
  • Top Ramen
Orange Chicken WHAT

When you have to choose a place and you realize it’s gonna be tough since you can eat everywhere your mind spins with happiness of what you’re about to enjoy (but it’s also overwhelming) that you never thought you would eat again, well maybe on my death bed at 105 LMAO. 

The grocery bill is magically way less…I can afford to eat again!!! Here I am dancing around with my glittery unicorn wand…

It’s been almost a full month since this new adventure of happiness has started. My son and his girlfriend asked me to compare certain foods that I remember the taste of…so far:

Cheez-its- regular ones. I could have sat down and ate the whole box. I was so excited they were coming out with GF ones in 2026, but I was really getting impatient. I did not eat the whole box, but I wanted to.

KitKats…I loved these, but the one I borrowed from my youngest, lol, was so gross. Come to find out it was a frozen stale KitKat…make sure these are not stale. Vomit! so much yumminess when fresh. I “borrowed” half of her replaced one, lmao.

Went to the OG with my fam. “Breadsticks Gang” as my son called us, but I didn’t have any, because I wanted room for my Never Ending Pasta bowls…they got in my belly, the mushroom sauce still amazing, wish it was a year round flavor!

I can’t seem to find the pistachio oreos, major sad face. 

Sushi for our anniversary…omgoodness I missed being able to order anything and everything. Well, the night of our anniversary we were shopping at Costco, because I needed snacks…AND I had Costco pizza, which I didn’t mind at all…drooling all over the place like a St. Bernard puppy. Someone grab me a bib!!

For breakfast at the NV Day Parade I filled up with dos Tipsy Lavender Lemonades and some Carls Jr. lol…

Doughboys…it melted in my mouth, the yummy warm maple gazed twist.

Yummy warm melted goodness

Okay, flash light off…blanket still over my head, because I am probably freezing…

I am having fun introducing all the foods I once loved back into my life. It has been quite the adventure. 

In no means do I regret being GF for the years I was, it taught me more than I realized it would. My heart goes out to those who can’t have gluten in their diet, yes food is becoming better tasting, but for an autoimmune disease that has been out there for over 100 years you would think there would be more food options in ALL stores, the food costs would be comparable to all food prices, and it wouldn’t be such a struggle to attend amusement parks, potlucks, and restaurants, etc. 

Breakfast Work Potluck

If you are the type of person who likes to donate to shelters, food pantries, etc, please think about those who have special diets and donate for them too.  

So, after my fun-ness of medical procedures I know my insides are healthy, my throat was stretched, would never recommend this unless it’s needed, so now no more choking…go ahead let your mind wander on that one.

If you are given a blood test for gluten and it’s positive, DEMAND a biopsy. Read your results, copy and paste them into google – it will break them down for you in words that are understandable. 

The best advice that was ever given to me by a doctor during COVID, ‘you are your own advocate, do your own research (I personally suggest looking at the UK research) and fight for your rights’. You can fire your doctor. You can get second opinions. And you can see all your doctor’s notes, it’s your right, they are usually posted in your chart, so download the medical apps, know what is happening with your body. 

I can poop some magical poop again!! Bahaha sorry not sorry. 

Love you all!! Thank you for enjoying my nonsense. 

AND as always…

Remember to enjoy the Sunshine, Sparkles, and Mother Fucking Unicorn Poop!!!!!

Featured

fragile

She was breaking,

Fragile as a grenade.

Tears fell down her dry cheeks,

Loud sobs nobody heard,

As she showered,

Burning her skin in the water hotter than hell.

Supervised…

Right.

Everyone downstairs,

Can’t hear her cries of pain.

Biting her lip,

Holding in the screams.

Waking up with blood on her lip.

Dreams,

Are they just a sad as she feels?

For the fog is dense,

Recalling them is difficult.

She sits alone,

Day after day.

Coloring,

Shows of randomness,

Paint the background.

Puzzles make the mind work.

Lies,

She’s okay,

But is she?

For she is the only one who truly knows the pain.

Can anyone see?

Are they paying attention?

Maybe they are bored of hearing the same shit on repeat…

Lessons have been learned.

She floats above herself,

Her heart pounds within her chest as the room spins,

Intoxicated,

But she’s not.

Broken,

She is not.

Drowning,

She is not.

What is this?

Death?

Nope, she won’t allow it.

Illness,

Yes, but fuck.

Hidden,

She hides.

Oh, does she fucking hide.

Bursting at the seams.

Fragile as a grenade.

Biting her lip,

The blood streams into her mouth,

Holding in the scream,

Tears fall,

The hot water turning her delicate skin pink.

Stepping her wet foot on the mat,

Falling into the wall,

Sliding to the floor,

Spinning,

She floats towards the ceiling,

Her heart pounded outside her chest.

Scared.

She’s fucking scared.

BUT i am beautiful

I am beautiful.

I will never have giant tits…unless they are fake,

I might always have a mom belly,

 I have stretch marks,

 My skin is no longer “beautiful”, because of my autoimmune disease

 My curves are itty bitty.

 BUT I see myself as sexy.

I am not filtered or censored,

 What you see is what you get.

 I will never look like a model or the girls on only fans, tv, or in magazines,

BUT I am beautiful.

 You see what you get.

I am a mom.

 My stretch marks reflect nine months of three different times growing a child within me,

 I am blessed.

But I am not what men drool over on social media

 I am me.

Down to earth.

 Simple.

 Beautiful.

Real.

I am a woman who loves herself,

 I wear what I want,

 I do not care what others think,

 I will stand up for myself,

 My mouth is foul.

 I am not perfect.

 I can pay my own way.

 I love life.

 I see the light in the darkness.

 I am loved.

 I am beautiful from the inside out.

I use no filters to shine bright or show my beauty.

My skin is not perfect.

I am not a model.

BUT I am beautiful.

Strong.

I am a mother.

I shine bright and light my little world by being just me.

 I make no apologies for who I am.

 I may not have large curves or be sexy like those who are airbrushed, but I am real.

I work hard for the body I have.

I love me,

that is all that matters.

I AM BEAUTIFUL.

There are times when we judge ourselves, because of what we see on TV, social media, or in person. But this is life. This is how we have lived for a long time. First it was Barbie’s body, then it was the models we saw in the magazines. We continue to grow up and still compare ourselves, even though we know we shouldn’t and know that we are beautiful in our ways. Our parents, family, and friends can tell us time and time again that we are gorgeous and beautiful, and we can tell ourselves, but if we aren’t strong enough to believe it, we will always compare ourselves. If we are strong enough will we believe it? Maybe on certain days, but we are human and we have our faults and bad days. Those bad days no matter how much we tell ourselves we are beautiful or strong we will not feel it. It is just part of life.

I love who I am. I love my personality, my smile, my humor, just everything about me. Do I have faults? fuck yes. But we all do. I am a firm believer that your personality makes you radiate from the inside out. We can be drop dead gorgeous, but if we are ugly on the inside, we shine ugly on the outside.

Are there things I hate about myself? Of course. I hate what my autoimmune disease has done to my body. It has changed my self confidence tremendously. This is something I have realized a lot lately. I hate that about myself. My bestie told me I have the biggest balls she has ever seen…lmao. But lately I feel I have lost that about myself. I feel weak. It is difficult for me to admit that, because I have come such a long way the last several years. The way my disease has changed my body has affected me more that I realized.

There are things I am still working on. I have said them in previous posts. My walls. They are definitely getting smaller which I am so proud of, you have no idea. And my moat…well the prey has left and now you can relax on a float while working on your tan. So, I am strong in parts of my little world and weak in others. Now if I could just be strong in all of my little world, I would be unstoppable.

I am beautiful. I am fucking beautiful. I love me. I am blessed. I have been through hell and back. I am lucky to be alive right now. I almost died. I am a survivor. I may hate parts of my body, but I am beautiful. I shine bright. I see past the darkness. I do not make apologies for who I am. I might be weak in areas of my life and strong in others, but I am working on myself always for the better, because I want to continue to a beautiful mother, woman, and role model.

We may always compare ourselves to those we see on TV, in magazines, or on social media, unfortunately that’s life. It’s how we grew up. WE are all beautiful in our own unique ways. Just because we don’t see ourselves as a goddess in our own eyes doesn’t mean someone else doesn’t. Love yourself always. You are BEAUTIFUL.

Sunshine and sparkles.  

Darkness

****I wrote this poem February 6th, 2006. It is very dark. I wish I could remember exactly what I was going through at the time****

 

I sit with nothing but hatred running through my veins

I’m angered beyond anything I’ve ever felt

I’m a stone with no way to express oneself

I sit here cold with waves of emotion crashing through me like a rip tide.

There is no one I have but myself.

With icy blood flowing I have no warmth for even lust.

Hatred fills my body

Tears splash to my cheeks

Popping pills may take my pain

But won’t heal me.

Waves slam me every which way

I am no longer in control

Warmth touches my skin in a red smooth covering

The blade is cold as it slits through layers of icy skin.

I sit here wondering what has happened

Such beauty gone

With the hatred others have made one feel.

Cancer sucks

****This entry is something I wrote after my Grandpa passed away from cancer. I was involved in Relay for Life for a very long time, I am still a strong supporter of the event. I wrote the first part of this to share my story as to how cancer touched my life. The poem I wrote to read at my Grandpa’s memorial. I wrote it as he was taking his last breath; a moment I will never forget****

My Grandpa was a stubborn man. Up until the very end he fought to do most everything on his own. Then he was gone. There were no more twinkles, no more hugs; all I have left are memories.

I stand here today knowing why I relay. When I first joined Relay for Life in August 2008 I joined to fight for a cure. I joined with the understanding cancer has touched me, but I NEVER EVER thought cancer would touch me how it has now. This evil disease is taking our loved ones from us. It needs to stop.

I relay for Stacey. A friend I met through relay who is one the strongest people I know. I relay for everyone in the park. I relay, because my Grandpa is not going to get to watch his grandchildren and great grandchildren grow and become what ever it is they are meant to become. I relay because he deserved to see his family grow. I relay so your grandparents and parents can watch their children and grandchildren grow. I relay for me. I relay because it is not fair that my Grandfather will not be here to see my little ones grow and change like a grandpa should.

Everyone here deserves to have everyone in their life watch their children become adults and make a difference in this world like we are making a difference with relay. I relay for those who want to give up. I relay for the fight. I relay because I know there is a cure out there. I relay because we should live our life’s without fear of cancer. I relay for more birthdays.

Cancer has touched everyone in the world, some in ways they never thought, others in ways they could not have imagined. Cancer needs to stop touching everyone. I relay.

 

Candles glow flickered with your last breath,

Sitting here crying;

As a chill lifted the room,

You surrounded me with one last hug.

Saying goodbye was hard to do,

No choice I had.

Free of pain,

No longer trapped.

Be in your happy place,

Among nature at its best.

In the garden,

In the forest in Tahoe,

Now with nature

Your free from all the sickness,

Roam,

Be free,

Soar among the birds you once fed,

Watch natures beauty,

Protect it.

Embrace us all with your love,

Love you back,

Sad to see you go,

Surround me with one last hug.

 

My Grandfather was diagnosed with cancer in January 2009. Three months later he took his last breath with his wife and children by his side. One of the last times I saw my Grandpa was the hardest. He did not recognize me. He stood across the room asking who I was in front of everyone. Then as soon as it registered who I was I saw the very last twinkle in my Grandpa’s eye. He came and gave me a hug. I stayed strong and did not shed a tear even though I wanted too.